Wednesday, August 27, 2008
I remember when we had our first home visit from our County service coordinator who asked us what we wanted Samantha to accomplish in her first year. I naiively said I wanted her to be walking by 12 months. She nodded and wrote it down, probably thinking I had a lot of learning to do, but she said nothing. Although I soon learned that my goal was a little unrealistic, I saw the progress Sammi made with Renee. It seemed like every week, the day after her PT appointments, Sammi would suddenly start to do something new, like sit up on her own, pull to stand, finger-feed. She took it all in, processed what she had learned, and began to practice on her own. It was amazing to watch. Samantha began walking at 21 months, ahead of the average age for children with Down syndrome. We are very proud, and know that Renee had such a huge impact on the process, both educating Samantha and educating us to ensure she reached her full potential.
Next week is the start of a whole new adventure: school. And thus, Renee will no longer be Samantha's therapist. But I like to think of it as the passing of the baton - we were so fortunate to have her in our lives, and now we can free her up to help another family and another child to reach his or her potential.
Thank you Renee.
Sunday, August 24, 2008
I don't have any photos today--I've been a little remiss in the photo-taking department lately. I had wanted to take pics at Bethany's yard sale yesterday (for those of you that don't know, Bethany at Life With Bubba And Chicky is in the process of adopting a little girl with Down syndrome from Russia, and the yard sale benefits the pricey costs of the endeavor), but left my camera in the car. And seriously, it's more trouble than it's worth sometimes to have to gather her back up, go back to the car, fish the camera out, and take pics while trying to keep her curious little hands off the breakable odds-and-ends that were for sale on the tables! Samantha and Payton finally got to meet, which was a bit anti-climactic since Samantha decided she was going to play shy for most of the time we were there. Payton was the perfect little hostess, trying to give Sammi kisses! Next time...
I was also planning on getting a few photos at my friend and former colleague Katherine's going away party yesterday (she and her husband are moving to Portland, OR next month). Samantha and I went all the way out to Tacoma Park to...nothing. Nobody was home except some barking dogs. The party is on September 6th. Can you believe it? I was 2 weeks early. I have never done that, even after having received 3 E-vite notices. I think I have every weekend until the end of September already accounted for, so this one got a bit confused in the shuffle. Hahahaha. Oh well, at least I know where it is now.
My totally adorable baby brother, Josh (shown above with his girlfriend, Kate, last December in one of my favorite photos), left his home of South Jersey for the big city wilds of Chicago last week. He'll be starting his freshman year at Columbia College Chicago. Hopefully we'll make it out there to visit him sometime! Good luck, Josh!
Wednesday, August 13, 2008
Tuesday, August 12, 2008
Friday, August 8, 2008
Sunday, August 3, 2008
Yesterday was the DSANV Summer Picnic. I'd actually been looking forward to it since the Spring Picnic, since Samantha was so cranky that day that we couldn't stay long. I was looking forward, in particular, to having Samantha play with all the other kids her age and for me to meet some of the children that have been photographed for the calendar, as well as some of the other members I've corresponded on and off with over the past year.
It was not to be. Samantha has been sick since Thursday. Mind you, this is a child who has never really been sick. I think she's had one low fever in the past, one cold, a few sniffles, and a mysterious short-term rash. Oh, and surgery for a complete AV canal, which I frequently forget about (I don't actually forget about it, but she was relatively healthy going into the surgery and her recovery was very quick--how can a mother ever really forget about open heart surgery??). On Thursday night she spiked a 102.7 fever and refused to eat dinner. Friday, Steve took her to the doctor and the doctor saw blisters at the back of her throat and right away diagnosed it as something akin to a foot and mouth disease that kids get (although it wasn't that). She said it was nothing to worry about, that the fever should end in a day or so, and the blisters will last for another 5 or so days. Steve looked up the illness online (I don't remember what it was called), and it said rashes are common on the extremities (which she has--click on the photo to the right for a scary view) and that it could have come from a swimming pool. We were at the Water Mine on Sunday--coincidence? I don't think so! The worst part of it has been that she is sleeping very, very lightly and fitfully, and that she just won't eat. We've tried everything, but I imagine that her throat must really hurt when trying to swallow food. Thank goodness for PediaSure. Good stuff! Oh, and ice cream. :-)