tag:blogger.com,1999:blog-1665234671536662968.post7271565757885574111..comments2023-06-26T08:43:42.640-04:00Comments on The Bates Motel: The Absence of Down SyndromeBeccahttp://www.blogger.com/profile/14963099760885760598noreply@blogger.comBlogger21125tag:blogger.com,1999:blog-1665234671536662968.post-35556861196112337712012-07-11T17:51:57.344-04:002012-07-11T17:51:57.344-04:00Great post, Becca!
A few weeks ago I was lookin...Great post, Becca! <br /><br />A few weeks ago I was looking at Madi and was noticing her flat bridge on her nose, the almond eyes......and all of a sudden I thought, "wow! I have a child with down syndrome". What I once thought the "picture" of someone with Ds was, it is NOT my reality today! I sometimes forget that Madi has Ds.......she's just Madi! My beautiful child!! <br /><br />I agree with someone elses comment.......you should write a book! :)Karriehttps://www.blogger.com/profile/17889720767790624104noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-64840979270336479982012-07-02T07:37:01.998-04:002012-07-02T07:37:01.998-04:00so well written Becca..so well written Becca..Pallavihttps://www.blogger.com/profile/09559697291093511944noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-65540164790172168552012-07-01T23:49:06.053-04:002012-07-01T23:49:06.053-04:00Really lovely post, Becca. And very well said.Really lovely post, Becca. And very well said.Leahhttps://www.blogger.com/profile/08985688905432556253noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-17025582500756604122012-07-01T11:55:01.462-04:002012-07-01T11:55:01.462-04:00Beautiful post.Beautiful post.wendyhttps://www.blogger.com/profile/00771187881429333283noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-7372203573671889282012-06-29T15:17:53.026-04:002012-06-29T15:17:53.026-04:00Beautiful!Beautiful!The Holt'shttps://www.blogger.com/profile/06524688846854596555noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-29562673667967640502012-06-29T10:47:40.299-04:002012-06-29T10:47:40.299-04:00Amen Becca! There have been so many times when peo...Amen Becca! There have been so many times when people will ask me if Abby has Ds and I am<br />Always surprised - not because they ask, but because they could see it without me telling them. Because I don't see it - I assume others don't. I also don't spend a lot of time writing about Ds, because my blog is about Abby, and that is just a part of her - it isn't HER. Excentlly put thoughts. Thank you for summing things up so perfectly!Elizabethhttps://www.blogger.com/profile/07466962123743981155noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-22135542134485173192012-06-29T09:07:28.744-04:002012-06-29T09:07:28.744-04:00Great post!!!!
And so so true!!!!!!
Ds goes from...Great post!!!!<br /><br />And so so true!!!!!!<br /><br />Ds goes from being all consuming at first to just... Ds.<br /><br />I forget Em even has it at times. I remember we went apple picking last year and the man driving the hay ride looked down at Em and started talking to her and was so kind. He looked at me and said he had a family member with Ds. After he left I asked my kids... Can you really tell by looking at her??? They just laughed at me! <br /><br />Meaning , she is just Emmie to us. A trouble making delightful ball of wonder.Stephaniehttps://www.blogger.com/profile/10792117187001612101noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-7541101754789352862012-06-29T09:04:22.377-04:002012-06-29T09:04:22.377-04:00Could not agree with you more...life just becomes ...Could not agree with you more...life just becomes your normal...and you forget really that Down syndrome is there. It surfaces every so often to remind you of certain things but then fades away... Replaced by the smiles and love of a wonderful child you enjoy every single day! Some people do think you are in denial...trying to maybe hide it...but what they do not get is to you and your family it is really not a big deal any more. No more pity needed here...life is our perfect, not theirs. :) great post...Beckyhttps://www.blogger.com/profile/01201595211241091609noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-82410019374417405492012-06-29T00:16:47.284-04:002012-06-29T00:16:47.284-04:00Excellent post, as usual! I had forgotten about se...Excellent post, as usual! I had forgotten about seeing Ds everywhere! I remember now, thinking SO many babies and young children might have 'it'. <br /><br />And you're right, eventually you just stop noticing. They're just... kids.Cindyhttps://www.blogger.com/profile/13760897671143549963noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-1466173414838445312012-06-28T23:48:46.304-04:002012-06-28T23:48:46.304-04:00I am sure you have been told this before but have ...I am sure you have been told this before but have you ever considered writing a book? Your writing style is so engaging and real and I think it would help so many people out there who aren't lucky enough to subscribe to your blog.Magikellyhttps://www.blogger.com/profile/06346690621845818318noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-27369027201604947922012-06-28T23:07:36.877-04:002012-06-28T23:07:36.877-04:00Absolutely beautiful...I love your blog because yo...Absolutely beautiful...I love your blog because you do talk about Ds sometimes, you share joys or struggles...But mostly you show your amazing daughter Sammi, just living her life :)<br /><br />LOVED this post!JChttps://www.blogger.com/profile/16040699928110444013noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-86589867228019703442012-06-28T21:17:49.465-04:002012-06-28T21:17:49.465-04:00Perfectly stated!!! Every so often I have a Down ...Perfectly stated!!! Every so often I have a Down syndrome day...where it is a forerunner in my thoughts, but those days are fewer and fewer. Like you when I look at my Ella I just SEE Ella!!!! Now Graves Disease I have some freaking issues with, lol. But...I guess just like with Ds it will become less and less of an issue.Kacey Bodehttps://www.blogger.com/profile/00416383186475328888noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-45066317534832636622012-06-28T19:59:38.719-04:002012-06-28T19:59:38.719-04:00great post becca!
Totally agree... it is there bu...great post becca!<br /> Totally agree... it is there but not life consuming<br /><br /> not long ago I was switching doctors and the receptionist was asking a thousand questions the last ? was meds he is on (this is long after I have told her just about W's life history mind you) I told her thyroid med and she was surprised b/c he is so young. Oh, I said, that is fairly common with people with Ds. She was shocked. OOps I forgot to mention W was born with Down syndrome, haha. I just dont think of that as a "medical thing" ya' know?my familyhttps://www.blogger.com/profile/00965034997906612228noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-33490661382257479962012-06-28T16:54:49.580-04:002012-06-28T16:54:49.580-04:00I'm definitely not saying that it's *gone*...I'm definitely not saying that it's *gone* but that it is no longer all-consuming. I don't see it when I look at my daughter, but that doesn't mean that I don't see her challenges and differences. She's certainly not just like her typical peers, and that *does* make me sad, but it's more the individual parts of her that I see, the challenges in bits and pieces, rather than Down syndrome as a whole. When I post photos of her on my blog, I'm not *trying* to make it look like we have an ordinary life. We *do* have an ordinary life. And I don't think that can be construed as denial. I think that's just our reality. I won't say that the differences get less, that the challenges dissipate, but that I accept them so much more as a part of her than I did in the beginning. :-)Beccahttps://www.blogger.com/profile/14963099760885760598noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-9030809371558806532012-06-28T15:56:34.179-04:002012-06-28T15:56:34.179-04:00I'm certainly no where near where I was when K...I'm certainly no where near where I was when Kamdyn was born. But a lot of things still remind me of Down syndrome. It is completely natural and normal in my life now, but I still feel the "differences". I don't know if that's because I have other children and something to compare, or if it will diminish over time. When I was on my way to take Kamdyn for blood work today, with a knot in my stomach, it was there. Things like that have a negative feeling to them, but I mostly have fond feelings toward Down syndrome, because even though there are challenges, I feel like the blessings are so much more. And it is just a part of us.teal915https://www.blogger.com/profile/14813778503107953220noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-30935118729548583362012-06-28T15:53:02.194-04:002012-06-28T15:53:02.194-04:00I've been mulling this over for a while - not...I've been mulling this over for a while - not just the grand "what does it all MEAN?" but what I do & don't put out there. About time I try to corral those thoughts - thanks for the push!krlrhttps://www.blogger.com/profile/14392064691347464660noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-36039989037703041022012-06-28T15:49:33.478-04:002012-06-28T15:49:33.478-04:00Fantastic article, Becca! This is how it should b...Fantastic article, Becca! This is how it should be with any disability-- it is a part of a person, but it is not all they are about. Regular life happens to everyone, and it is the celebration of regular life that brings us together more than the disabilities that we blog about.Anonymoushttps://www.blogger.com/profile/09994549194965781369noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-78034096432420424752012-06-28T14:41:18.405-04:002012-06-28T14:41:18.405-04:00How can you not ignore it most of the time? It is ...How can you not ignore it most of the time? It is only 1/47th of her makeup, so if you talk about it 1 in every 47 posts, then you are being more than fair to that extra chromosome :-)TUChttps://www.blogger.com/profile/15929114678006935831noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-56485164572072393702012-06-28T14:30:57.395-04:002012-06-28T14:30:57.395-04:00perfectly said!perfectly said!Lisahttps://www.blogger.com/profile/05629881773181999504noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-76883175484000024752012-06-28T14:08:57.158-04:002012-06-28T14:08:57.158-04:00and that is the way it should be! That is why I l...and that is the way it should be! That is why I love your blog. Our lives don't focus on ds because truly I don't see it in the girls unless someone reminds me.Rochellehttps://www.blogger.com/profile/11866781944242761406noreply@blogger.comtag:blogger.com,1999:blog-1665234671536662968.post-77860492668546289552012-06-28T14:03:47.866-04:002012-06-28T14:03:47.866-04:00Excellent and well said, Becca!Excellent and well said, Becca!Anna Theurerhttps://www.blogger.com/profile/06937391910402532608noreply@blogger.com